Matt Bellgard

Professor Bellgard is the inaugural eResearch Director at Queensland University of Technology. Previously, Professor Bellgard was the Director of the Centre for Comparative Genomics, a Western Australian State Government Centre of Excellence for over 12 years. The CCG undertakes research in the biomedical and agricultural sciences on themes as diverse as human health, personalised medicine, animal and plant genomics and pathogens and viruses. As CCG Director, he was responsibile for the expansion of the Centre into the fields of rare disease and molecular therapy. Pioneering research on innovative rare disease registries development and novel therapies for muscular dystrophy. Under his leadership, he has led the Centre into exponential growth. 

Professor Bellgard has a particular interest in rare diseases. He has become Chair of the APEC Rare Disease Network to address the barriers to Healthcare Services for populations affected by rare diseases. Under his leadership the CCG has deployed secure ICT solutions to: private hospitals; Department of Health - Western Australia; global and international rare disease patient advocacy communities and industry. These solutions address policy, privacy and consent issues across jurisdictions and require diverse, ongoing stakeholder engagement. His scientific work has resulted in developments in both the areas of pairwise sequence alignment and artificial intelligence, human genomics, bacterial bioinformatics, whole genome analysis and annotation for a range of species, as well as eResearch across a range of disciplines.

Professor Bellgard’s is currently co-leading development of digital infrastructure for funded collaborative research in adaptive platform trials that are of particular relevance for rapidly evaluating new therapies. This activity critically relies on quality health data linkage, patient engagement and reliable secure digital platforms that can operate across jurisdictions and health stakeholder business units.

Talk:

New registry platforms for genetic lipid disorders